NEWARK, N.J. – U.S. Senators Bob Menendez (D-N.J.) and Sheldon Whitehouse announced that their bipartisan Hemophilia Skilled Nursing Facilities Access Act passed as part of the year-end federal spending and COVID-19 bill. The Act will improve access to critical health care services for individuals with hemophilia provided through Skilled Nursing Facilities (SNF) by adding their treatments to the list of services paid for separately by Medicare. Currently, Medicare patients with hemophilia and other bleeding disorders struggle to find skilled nursing facilities that will accept them due to the high cost of clotting factors which can exceed $10,000 a day. The bill was also co-led by Senator Mike Enzi (R-Wyo.).

“I introduced this bill because Medicare patients with bleeding disorders should not have to worry that the high cost of clotting factors will make it impossible to find a skilled nursing facility where they can get the treatments they need after hospitalization,” said Sen. Menendez. “With passage of the Hemophilia Skilled Nursing Facilities Access Act we will give individuals with hemophilia the peace of mind in knowing they’ll get the care they need, when they need it, and in the most medically appropriate setting.”

“Skilled nursing facilities provide important care for patients with hemophilia and other bleeding disorders.  Expensive bureaucratic hurdles shouldn’t get in the way of that care,” said Sen. Whitehouse. “I’m pleased to see this bipartisan legislation pass.”

We are grateful to our Senator, Bob Menendez, for his unwavering support in advocating for members of the bleeding disorders community across the state of New Jersey, and the nation,” said Stephanie Lapidow, Executive Director of the Hemophilia Association of New Jersey. “We would also like to thank Senator Enzi for his strong support throughout this process.  Adding clotting factor therapies to the list of services excluded from the Skilled Nursing Facility (SNF) per diem will give patients with bleeding disorders in New Jersey, and across the country, access to the care they need after being hospitalized.”

The legislation is co-sponsored by Sens. Lisa Murkowski (R-Alaska); Shelley Moore Capito (R-W.V.), Jeanne Shaheen (D-N.H.) and Kirsten Gillibrand (D-N.Y.)

There are almost 15,500 SNFs across the U.S. –including 364 in New Jersey– that provide short-term, intensive, inpatient rehabilitation services to more than 1.35 million people who no longer need to be in a hospital setting but still require health care services.

The Hemophilia Skilled Nursing Facilities Access Act was supported by the Coalition for Hemophilia B, the Committee of Ten Thousand, Hemophilia Alliance, Hemophilia Federation of America and the National Hemophilia Foundations.